See You Now: A Memoir of Shane's Triumph over SMA

By Lisa Oltmans

Biography & memoir | eBook


A true story of miracles and divine interventions. Shane received a death diagnosis at the tender age of 8 weeks old. According to the medical books, babies with the most severe form of spinal muscular atrophy type I, also called Werdnig Hoffman, never survive the age of 2 years old. With a great deal of courage and a wonderful sense of humor, he overcame many obstacles to beat the odds and live. Shane’s parents, encouraged by their infant’s fighting spirit, dedicated their lives to help him fight. As Shane grew up, his personal goal was to live through his pediatric illness and become an adult. This is his SMA survival story. Using his own sheer willpower, faith in God, and faith in his parent’s, Shane triumphantly overcame SMA. With the help of home health nurses, doctors, and therapists, Shane’s parents gained the skills needed to perform life-saving medical procedures. Juggling employer health care plans, they kept Shane on private insurance until he transitioned into SSI and adulthood. All proceeds from this book will be donated to the Spinal Muscular Atrophy community of affected infants, children, and adults. For more information about spinal muscular atrophy see the web site of Families of SMA at http://www.curesma.com


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A true story of miracles and divine interventions. Shane received a death diagnosis at the tender age of 8 weeks old. According to the medical books, babies with the most severe form of spinal muscular atrophy type I, also called Werdnig Hoffman, never survive the age of 2 years old. With a great deal of courage and a wonderful sense of humor, he overcame many obstacles to beat the odds and live. Shane’s parents, encouraged by their infant’s fighting spirit, dedicated their lives to help him fight. As Shane grew up, his personal goal was to live through his pediatric illness and become an adult. This is his SMA survival story. Using his own sheer willpower, faith in God, and faith in his parent’s, Shane triumphantly overcame SMA. With the help of home health nurses, doctors, and t...


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“Author Lisa Oltmans writes with conviction and certainly knows a lot about spinal muscular atrophy (SMA) – a veritable death sentence for her son Shane, who defied the odds and lived until young adulthood. She also exhibits enough faith for a small army. Of her son’s passing, she writes, ‘I lived for 22 years 1 month and 2 days with a person full of light’ one of many examples of her a glass half full approach to a devastating situation. Yet she neither sugarcoats her circumstances nor condescends to the reader. Instead she offers a step-by-step line of attack against and practical suggestions for dealing with a disease that weakens all the voluntary muscle systems by robbing the body of its ability to eat, breathe and move. This book will be especially useful for people dealing with a loved one with any debilitating disease. And those who prefer to avoid the subject entirely might do well to read it as well, if only to appreciate what they do have and take a note from this author’s approach to life’s challenges.” By Judge, 3rd Annual Writer’s Digest Self-Published eBook Awards


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“Author Lisa Oltmans writes with conviction and certainly knows a lot about spinal muscular atrophy (SMA) – a veritable death sentence for her son Shane, who defied the odds and lived until young adulthood. She also exhibits enough faith for a small army. Of her son’s passing, she writes, ‘I lived for 22 years 1 month and 2 days with a person full of light’ one of many examples of her a glass half...


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